Young Women’s MBC Disparities ANGEL Advocate Program & Application

Challenges:

  • MBC disproportionately affects the African American community and younger women.
  • Black women and white women get breast cancer at about the same rate, but black women are 40% more likely to die from breast cancer than white women.
  • Black women are more likely than white women to get triple-negative breast cancer, a kind of breast cancer that is often aggressive and recurs after treatment.
  • Due to a legacy of exploitation of people of color in the clinical trial/scientific/research settings, African American women have a mistrust of the scientific, healthcare system and providers.
  • African American women have lower enrollment in clinical trials, which makes it more difficult to design treatments for this population, which may contribute to lower mortality rates.

Tigerlily Foundation’s Young Women’s MBC Disparities Outreach Initiative Goals:

To reach young women in underserved communities and those facing disparities through immersive experiences.

We began this work by first holding a “listening” event to better understand the needs of younger women and younger women of color.  We aimed to get the perspectives of the people we want to serve, address issues of mistrust, lack of education, cultural competency and build alliances with the community we want to impact. Based on insights gathered, and recommendations we are inviting young women of color who are usually not “at the table” to an MBC Disparities Fireside Chat at the San Antonio Breast Cancer Symposium (SABCS) on December 10, 2019.

Expectations of Applicants:

  • Attend and actively participate in our Young Women’s MBC Disparities Fireside Chat at SABCS
  • Participate in the Clinical Trials Tweet Up at after the panel discussion at the MBC Disparities Fireside Chat at SABCS
  • Share via social media, so that the conversation is amplified in your communities (via Facebook, Instagram, Twitter, LinkedIn)
  • Attend selected SABCS events, along with an experienced mentor
  • Patient advocates/research partners to attend poster sessions and learn more about the science behind breast cancer, research and clinical trial initiatives, if applicant is interested
  • Blog about participation and what was learned after the event
  • Commit to being part of a cohort of our advocacy program for two years: to learn, share, grow, host events and other outreach activities in your communities, educating them about MBC, genetics/genomics, clinical trial engagement, and the importance of self-advocacy

Qualifications:

This program is open to African American and other women of color who are: 1) between the ages of 21 and 45; 2) committed to advocacy, policy and transforming health outcomes in their community; 3) early stage breast cancer survivors; or 4) living with metastatic breast cancer. Preference will be given to women based on the criteria above.  Additional key criteria for consideration are listed below:

  • Initially diagnosed under the age of 45 and had prior treatment
  • Must be a resident of the United States
  • Young women of African American background, from communities that have been identified as locations where there are more African American women diagnosed with breast cancer, such as the following city and states: Atlanta, GA, Baltimore, MD, Chicago, IL, Houston, TX, Los Angeles/Long Beach, CA, Memphis, TN, Philadelphia, PA, St. Louis, MO, Virginia Beach, VA, and Washington, DC
  • Women who have been diagnosed with and are living with metastatic breast cancer
  • Applicants must commit to participating in monthly calls to discuss program needs and updates, partnerships and training opportunities
  • Applicants must be available to attend at least two trainings and at least one to two conferences a year for which Tigerlily Foundation will cover travel
  • Applicants must commit to sharing their community perspectives with Tigerlily, working with Tigerlily to educate us on how to better serve your communities, share content on risks, MBC, clinical trial engagement, genetics and genomics, healthcare provider engagement and more, on social media (blogs, articles, Facebook/Instagram videos, etc.) and monthly sharing of other program content relevant to the African American population
  • Applicants must commit to hosting at least three educational/outreach/training/event annually to engage and educate members of their community, for which Tigerlily Foundation will cover the expenses. Applicants must attend the inaugural Tigerlily Foundation Young Women’s MBC Disparities Fireside Chat at SABCS (San Antonio Breast Cancer Symposium). Travel dates are 12/9/2019 through 12/11/2019. Travel and accommodations will be provided by Tigerlily Foundation.  Learn more about the event: https://www.tigerlilyfoundation.org/event/sabcs-metastatic-breast-cancer-disparities-fireside-chat/

As a Tigerlily MBC Disparities ANGEL Advocate attending the Young Women’s MBC Disparities Fireside Chat at SABCS, you will be working with and learning from those representing advocacy and scientific work related to breast cancer. Tigerlily will train you as a new MBC Disparities patient advocate and offer you the opportunity to share your voice “at the table” at the largest scientific global breast cancer event.  At SABCS, you will be given tools to make an impact in your community at home.

Please complete the application here to apply to be a Tigerlily MBC Disparities Angel Advocate.

Please complete and submit your application by October 11, 2019, 5 p.m. EST.  Email mbc@tigerlilyfoundation.org with any questions.