Tigerlily Foundation stands together against barriers that limit Black, BIPOC and unrepresented populations from accessing equitable healthcare.
The RACE Alliance is a collaborative of patients, experts, caregivers, community leaders and partners, who have signed our #InclusionPledge, focused on establishing priorities and implementing measurable interventions to end MBC disparities for black women. Vision: The vision of the RACE Alliance is to end breast cancer disparities in women of color in our lifetime.
The RACE Alliance also serves as a hub for action, information and resources. We aim to leverage our resources to make real change in our lifetime.
We ask that as you move through our resources and pages you start by signing and sharing the #InclusionPledge. Together we can work toward dismantling systemic barriers to end health disparities in our lifetime.
The Tigerlily Foundation #InclusionPledge Playbook is a roadmap for the pharmaceutical industry and highlights specific, measurable, and timebound tactics which can be taken by stakeholders to eradicate barriers in cancer care for Black women while focusing on achieving health equity. Simply stated, this #InclusionPledge Playbook highlights what is possible when pharmaceutical companies commit to transparency, truth, and transformation.
Within the playbook:
- Information, statistics, actions, and strategies to help educate companies about the healthcare disparities faced by Black women.
- Knowledge to help make a commitment to anti-racism and invest in and develop specific, measurable actions to dismantle systemic barriers, while simultaneously co-create solutions that will result in health equity for Black women and end disparities in our lifetime.
More than two years since Tigerlily Foundation inception of the #InclusionPledge, in the context of the COVID-19 pandemic and the growth of the Movement for Black Lives since of 2020, we believe the time is right to reflect on the Pledge and its progress. To carry out this vital task of tracking progress, we solicited the guidance of Equity Based Dialogue for Inclusion (EBDI), a diversity, equity, inclusion, and justice (DEIJ) consultancy with expertise in qualitative research. We chose to engage EBDI to help us understand and highlight the accountability journeys of our Pledge partners, and to offer their unbiased expertise on the most promising practices to support health and cancer care equity.
Throughout 2022, the Tigerlily Foundation will publish a series of five papers. These papers will highlight the importance of family health history, genetic testing and risk assessments in communities of color, barriers to diversity in clinical trials, community-based approaches to health, the role of data informatics in the electronic health records, and long-term survivorship in the breast cancer community.
To ensure patients have the right resources at their fingertips, we have created barrier toolkits. We listened to our patients and created these for and with patients and caregivers. Download our Barrier Toolkits to learn more about breast health, lifestyle, wellness, prevention, and ways to lower your risk and experience. Next, sign the #InclusionPledge.
Tigerlily Foundation has created a standard of best practices to dismantle systemic barriers that Black women face by sector.
The Industry Guides to the #InclusionPledge serve to help a variety of stakeholders end racial disparities in our lifetime.
#KNOWMOREDISPARITIES AND #PULLUPASEAT BI-DIRECTIONAL CONVERSATION SERIES
Launched in Fall 2020, the Tigerlily Foundation and Guiding Researchers & Advocates to Scientific Partnerships (GRASP) monthly conversation series shines a light on the experiences of Black women with breast cancer through two conversations, #KnowMoreDisparities and #PullUpASeat. The #KnowMoreDisparities conversations are facilitated for and by Black women will create a safe space for honest conversations with Black physicians, patients and medical clinicians to discuss their experiences of health inequality, implicit racial bias and lessons learned. After two weeks, the #PullUpASeat conversations, co-hosted by a Black patients and doctors will amplify the voices of Black women through candid conversations with non-Black physicians and medical clinicians on the conversation topic and determine solutions to the high mortality rate of black women.
Our mission is to leave each participant with actionable tools that provide a tangible way to end a barrier for patients of color; as well as to educate allies in the healthcare/scientific/research/industry community and provide them with a deeper understanding of how to support, engage and collaborate with patients.
- Addressing Trauma and Changing Patient Outcomes
- Addressing Barriers within Clinical Trials and Clinical Healthcare Practices
- Cancer While Black: How Trauma, Fear, Generational Mistrust and Pain Impact Breast Cancer
- Cancer While Black: Moving Past the Medical Mistrust Impact
- Why Black Genes Matter – A conversation on genetic counseling
- Patient Advocacy in Policy Change to End Health Disparities
- September 2020 PullUpASeat: Addressing Clinical Trials and Healthcare Practices
- October 2020: PullUpASeat Cancer While Black: How Trauma, Fear, Generational Pain & Mistrust Impact Breast Cancer
- November 2020 Pull Up A Seat: Cancer While Black
- February 2021 PullUpASeat: Why Black Genes Matter
- March 2021 PullUpASeat: Patient Advocacy in Policy Change to end disparities
- April 2021 PullUpASeat – Diverse Patient Populations on Bi-directional Education and Research
- May 2021 PullUpASeat- Can Lifestyle Affect Black women’s Risk of Cancer?
- June 2021 PullUpASeat – When Living in Your Zip Code Kills
- October 2021 PullUpASeat – Eliminating the financial burden of breast cancer treatment
- December 2021: Pull Up A Seat: Special Virtual Fireside Chat on Survivorship & Health Disparities
- March 2022 #PullUpASeat Patient Advocacy in Policy Change to End Disparities
- April 2022 #PullUpASeat – How Breast Cancer Can Affect Bone Density
- May 2022 #PullUpASeat – Improving Patient Outcomes
- July 2022 #PullUpASeat – When living in your zip code kills and how to change that (Part II)