The Young Women’s MBC Disparities Alliance is a collaborative of patients, experts, caregivers, community leaders and partners, focused on establishing priorities and implementing measurable interventions to end MBC disparities for black women.
Vision: The vision of the Young Women’s MBC Alliance is to end breast cancer disparities in women of color in our lifetime. Goal:Build global collaborative addressing MBC disparities to lower the mortality rate for black women.
Charter: The Young Women’s MBC Disparities Alliance will work to develop evidence-based initiatives to advance understanding and awareness of breast cancer in women of color; establish and execute public and health care professional education activities; to conduct prevention research; to strategically work to end barriers for black women by addressing those barriers and ensuring accountability within stakeholder communities. The Alliance will also provide research, develop, implement and evaluate evidence-based activities for this high-risk population.
Membership: The Young Women’s MBC Disparities Alliance will consist of an Executive Committee, and Members. Members will include organizations, corporations and individuals with expertise in breast cancer, metastatic breast cancer, health disparities, epidemiology, technology, healthy lifestyle, early detection, diagnosis, public health, social marketing, genetic screening and counseling, treatment, and in related disciplines with a specific focus on women who are young, metastatic and African American.
- MBC disproportionately affects the African American community and younger women.
- Black women and white women get breast cancer at about the same rate, but black women are 40% more likely to die from breast cancer than white women.
- Black women are more likely than white women to get triple-negative breast cancer, a kind of breast cancer that is often aggressive and recurs after treatment.
- Due to a legacy of exploitation of people of color in the clinical trial/scientific/research settings, African American women have a mistrust of the scientific, healthcare system and providers.
- African American women have lower enrollment in clinical trials, which makes it more difficult to design treatments for this population, which may contribute to lower mortality rates.
- Frequency: Meetings will be held every other month.
- Create systemic change
- Inclusion pledge (eradicate systemic barriers for women of color)
- Elevate the voices of African American patient perspectives
- Disparities exists campaign (women of color perspective)
- Address the psychology of racial/social injustice and/or unconscious bias impacts the patient and stakeholders
- Address cultural, socio-economic, literacy, financial toxicity, geography, access and systemic barriers
- Change outcomes / mortality rates
- Clinical trial education campaign
- Clinical trial location site in cities with the highest mortality rates
- Scientific partnership with communities and patients of color
- Healthcare provider disparities educational campaign
- Education of genetics
- Early education breast health and breast cancer
- Clinical trial education campaign
- Provide funding opportunities for small, local African American led non-profit organizations
- Study the Specific Science of Breast Cancer in African American women
- Provide mentorship and training opportunities for small, local African American led non-profit organizations
- * Create “For us, by us” Resource Bank for individuals/communities not of color: train providers, medical personnel, researchers, caregivers, clinicians, pharma, and all stakeholders on the unique needs of people of color
- Provide immersive community-based activities and interventions
- Address emotional trauma and fear surrounding black women and breast cancer, stigma and offer psychosocial support
Foster ownership, empowerment and fearlessness in women of color
- Influence policy
- Work to develop legislation for the African American woman that would build on the Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act, spearheaded by Rep. Debbie Wasserman Schultz
Committee Members: Coming soon!
Frequency: Meetings will be held every other month.