MY LIFE STORIES

Being diagnosed with metastatic breast cancer can be a daunting experience, but realize that you are not alone. Through MY LIFE Stories, we hope to inspire young women to see that as challenging as this experience might be, there are others like you, who are using their time in a powerful way. Read the MY LIFE Stories below.

MY LIFE PROGRAM

Want to be a part of our MY LIFE Twitter Chats? Send us topics you’d like us to address to mbc@tigerlilyfoundation.org. Access our previous twitter chats transcripts if you are unable to join us. Also, subscribe to our newsletter on our home page.

Twitter Chat Page

Join our Facebook page. We provide information on metastatic breast cancer throughout the year; and conduct social media campaigns to educate you more about the topic.

Subscribe to our newsletter on our homepage to receive our quarterly MY LIFE newsletter. You can also get current and archived editions here.

The MY LIFE Advisory Committee is comprised of a coalition of fearless and empowered young women, living with metastatic breast cancer, who provide leadership, insight and direction for Tigerlily Foundation’s MY LIFE Program.

Our MY LIFE Podcasts feature the perspectives of young women living with MBC, giving insight into their needs, challenges, and offering awareness and support to other Metsters. Monthly episodes will be released on the 1st of each month and posted on the My Life Blog and will also be available in the iTunes Store.

Approximately 150,000 people in the U.S. have Metastatic Breast Cancer (MBC), which annually claims more than 40,000 lives a year.  The African-American community is disproportionately impacted by MBC, yet have lower enrollment in clinical trials and often are under-represented in the conversation on the unique needs and priorities of young women of color living with stage 4 breast cancer.  Tigerlily Foundation’s MBC Disparities Outreach Program takes a three-pronged approach to culturally competent education and outreach:  listen, communicate and mobilize.

We held our first MBC Disparities Listening Summit in March 2019 – the first ever of its kind, where we had a powerful dialogue engaging the African-American community, centered on understanding the gaps, misperceptions and barriers to educate young women of color on metastatic breast cancer (MBC). We held this event in collaboration with young women, patients, caregivers, community leaders, creators, healthcare providers, advocates, researchers and policymakers.  At this Summit, we gathered insights, and will apply these recommendations to create culturally sensitive grassroots materials and mobilize ambassadors with tools to be their best advocates, better understand clinical trials, and to engage their communities, to lessen the gap, and lower African-American breast cancer mortality rates.

Over the next year, through this Disparities Outreach Program, we will share educational content, and will host regional MBC Disparities Listening Summits to learn about the unique perspectives, challenges and opportunities to better reach young women of color

EXTERNAL RESOURCES

Things to Think About

Helping Yourself Live When You Are Dying

Wedding

Wish Upon a Wedding is a nonprofit organization granting weddings and vow renewals for couples facing serious illness or a life-altering circumstance.

PARTNERS

Learn more about our MY LIFE Partners

If you serve young women in the metastatic community and want to partner with us, please email mylife@tigerlilyfoundation.org.