YOUNG WOMEN’S MBC DISPARITIES FIRESIDE CHAT AT SABCS
December 10, 2019 @ 7:30 am - 11:00 am
December 10, 2019 7:30 A.M. – 11 A.M.
Menger Hotel, Minuet Room 204 Alamo Plaza San Antonio, TX 78205
A dialogue engaging the African-American community, centered on understanding the gaps, misperceptions and barriers to educate young women of color on metastatic breast cancer (MBC), and giving them a “seat at the table”, at the San Antonio Breast Cancer Symposium (SABCS), a global scientific gathering. Often, the scientific/research/advocacy community is called upon to participate and give insights at scientific/advocacy events; yet the people we are trying to reach are not even aware or given the opportunity to participate. This event, the Tigerlily MBC Disparities Fireside Chat at SABCS will convene diverse representation of people from communities of color – the communities most highly impacted by MBC. This event will be the first of its kind historically, bringing together such a wide range of people to an event like SABCS, to discuss the challenges affecting this community and how to bridge them. For many of these advocates, it will be their first time hearing of and/or being given the opportunity to attend such a powerful, international event and to sit side-by-side with some of the most impactful people in the space of breast cancer. Working with and learning from those at SABCS, we will train these new advocates, put them at the table at the largest scientific global breast cancer event, and give them the tools they need to make an impact in their communities.
While attending the MBC Disparities Fireside Chat event, we will:
train individuals who are new to advocacy to create a storyline of their diagnosis and treatment, and support them as they share their unique perspective as a woman of color with MBC.
attend various SABCS meetings, providing them with additional “seats at the table”.
empower the advocates to share their perspectives via social media, blogs, and video while at the event, and after.
We invite young women, patients, caregivers, community leaders, healthcare providers, advocates, researchers and policymakers to join us in partnership for a day of strategic planning.
Our 2019 goal is to enhance our current MBC activities to reach healthy young women,underserved communities and those facing disparities. We plan to work with early stagers, the MBC community, teaching schools – to include HBCUs, community, faith-based, policy and advocacy partners, to conduct outreach in underserved communities, targeting the African-American community. This outreach will be done on college campuses, with faith-based institutions and in social settings where young women of color frequent. The goal will be to reach young women of color, a community that is highly impacted by MBC, to increase education of MBC as well as increase engagement within the breast cancer community.
We began this work in March 2019 by first holding the MBC Disparities Listening Summit, a “listening” event to better understand the needs of younger women and younger women of color. This “listening” event engaged young women, women of color, community health influencers and people living in those communities, to better understand the challenges and gaps when it comes to educating healthy young women, the community and women of color living with MBC on how to better engage when it comes to MBC. We engaged local community health groups, people of color and those not usually “at the table” at scientific or advocacy events. We aim to get the perspectives of the people we want to serve, address issues of mistrust, lack of education, cultural competency and build alliances by engaging people in outreach who look like those we want to impact.
At the MBC Disparities Listening Summit, we gathered key insights, which will be used to build an educational campaign focused on young women of color. The campaign will target women of color, designed by women of color, and will educate young women and people in underserved communities of color and empower this community with tools to engage with each other, healthcare providers, and advocate for themselves.
Our next step, based on the recommendations from the MBC Disparities Listening Summit, is to engage young women of color who are usually not “at the table” in advocacy work and at scientific conferences. With this in mind, we will hold the upcoming MBC Disparities Fireside Chat at SABCS in December.