Maimah Karmo is the Founder and CEO of Tigerlily Foundation and a ten year survivor of breast cancer. On February 28, 2006, at 4:45 p.m., Maimah was diagnosed with Stage 2 breast cancer. She had no family history of breast cancer; and was 32-years old. While undergoing chemotherapy, she made a promise to God that if she survived, she would create an organization to educate, empower, advocate for and support young women affected by breast cancer. After her second treatment, Tigerlily Foundation was born. Beginning in chemotherapy, Maimah grew Tigerlily Foundation from a concept to a national organization, with hundreds of volunteers nationwide, providing breast health, wellness and transformational programs to young women in more than 43 states.
Ricki Fairley is the Founder, President and Thought Leader of DOVE Marketing, a marketing agency with a mission to deliver iconic thinking, strategic problem solving and creative genius to clients seeking profitable business results. Fairley is a seasoned marketer with over 30 years of marketing experience including 20 years in brand management at Johnson & Johnson, Nabisco, Reckitt & Colman and The Coca-Cola Company, and over ten years in agency leadership encompassing strategic planning and consulting for numerous Fortune 500 companies. She is passionate about helping clients identify marketplace opportunities, establish insight-based objectives and strategies, and build results-driven campaigns with resonating creative. Ricki holds the Leadership Award from the Creative Thinking Association of America and was named a Top 100 Marketer by Black Enterprise Magazine in February 2011.
As a Stage 3A Triple Negative Breast Cancer Survivor/Thriver, Ricki’s personal purpose, passion, mission, ministry and blessing is to raise awareness, fundraise for a cure for breast cancer and support and coach what she calls her “Breastie” sisters through their breast cancer experience. Ricki serves as the Vice President of Strategic Partnerships and National Programs for Sisters Network Inc. and is building a movement to address Black Breast Cancer as a unique and special disease state, with the overall goal of reducing the mortality rate for Black women. She serves on the Board of Trustees for the Triple Negative Breast Cancer Foundation where she spearheads the Marketing Committee and directs multicultural outreach. She established a presence for the Foundation in African American targeted media/social media vehicles. She is a board member for the Center for Healthcare Innovation, a non-profit research and educational institute making healthcare more equitable. She also serves as an Ambassador and Advisor for the Live Humanly Campaign and works with companies to provide the patient advocate voice for breast cancer drug development. She serves on the National Accreditation Program for Breast Centers (NAPBC) Advocacy and Outreach Committee, and the CDC Advisory Committee on Breast Cancer in Young Women. She writes regularly for BlackDoctor.org, Black Health Matters, the Cincinnati Herald and the Black Press.
KEITH D. CRAWFORD M.D., PH.D. Director of Clinical Trials and Patient Education Prostate Health Education Network
Dr. Crawford has more than 20 years in the Life Sciences industry and completed his graduate and post graduate training at Harvard Medical School where he developed competencies in the area of genomic, proteomics, immunology, microbiology, infectious disease, and regenerative medicine. During his post-doctoral training, Keith was selected by Robert Wood Johnson Foundation as a Harold Amos Fellow. His work in the field of immunology caught the eye of the Department of Defense, where he was funded to develop antidotes for chemical and biological weapons exposure as well as creating a high throughput platform for the detection of recent exposure to infectious agents.
After completion of this directive, Dr. Crawford became the principal investigator at the Center for Molecular Orthopedics at Brigham and Women’s. He was responsible for leading research efforts in the Center, which gave rise to the discovery of a novel population of adult stem cells, early lineage adult. Keith and laboratory were responsible for the preclinical studies, which laid the foundation for a spinal fusion therapeutic. Keith is a graduate of University of Texas Medical School in Houston (Medical Doctorate) and Harvard University (Doctor Philosophy) where he studied cell biology and immunology.
I’m Nunny Keyla Reece. I was Diagnosed in 2017 ER/PR + HER2-Metastatic Breast Cancer.
My first mammogram was 9/18/15 after feeling a lump in my right breast. The radiologist told me it was benign fatty tissue and to come back in six months for a checkup or sooner if I noticed any changes. Of course, I didn’t go back in six months because there were no changes, no history of breast cancer in my family, and I was only 37 years old at the time. Around the end of May in 2017 I found a new lump up under my arm and around the same time I started having this severe pain in my back. I tried to ignore it because a lot was happening in my life at the moment. My mom had just passed away from Alzheimers and about five weeks after her death my dad passed away from stage IV colon cancer. Going to the doctor wasn’t on the top of my list until I woke up one morning and couldn’t get out of bed because of the severe back pain. Eventually I went to the doctor. On June 7,2017 I had a mammogram and ultrasound, and it came back highly suspicious for malignancy at the age of 39. On June 12, 2017, I had a breast biopsy which confirmed the breast cancer. Additional images and tests confirmed that I was already a metastatic breast cancer patient. That was a hard pill to swallow. All I could think about was my husband and children.
I started to attend conferences to educate myself. I started sharing my story to educate my community as well. When I was diagnosed I felt alone. I did not see other African American women like myself. But it became deeper than that. To hear other AA women say they knew nothing about MBC was unacceptable. AA women would also say because they didn’t see us on TV commercials,magazines,conferences,brochures they thought it was only a white woman disease. That too was unacceptable.
In 2018 I became Young Advocate for Living Beyond Breast Cancer, 2019 I became an Advocate for the
Susan G. Komen North Carolina Triangle and 2020 I joined the Tigerlily Foundation as a Angel Advocate. I work hard in community sharing information regarding MBC.
Craig H. Lipset
Craig Lipset is a recognized leader at the forefront of innovation in clinical research and medicine development. He is a growth advisor to technology and biopharmaceutical companies, leading universities, and the venture community, bringing vision and driving action at the intersection of research, digital solutions, and patient engagement. Craig was the Head of Clinical Innovation and Venture Partner at Pfizer, on the founding Operations Committee for TransCelerate Biopharma, and on the founding management teams for two successful startup ventures (Perceptive Informatics and Adnexus Therapeutics). During that time, Craig designed and launched multiple industry firsts — from the first fully remote/virtual clinical trial for a new medicine to the first returning of results and data to research participants. He currently serves on the Board of Directors for the Foundation for Sarcoidosis Research, the MedStar Health Research Institute, and the People-Centered Research Foundation (the central office for PCORnet), as well as on the Editorial Board for Therapeutic Innovation & Regulatory Science. Craig has been listed among the PharmaVOICE most inspiring people in the life sciences (Red Jacket hall-of-fame), Pharmaceutical Executive’s Emerging Leaders, CenterWatch Top 20 Innovators in Clinical Trials, and the AlleyWatch Who’s Who in eHealth. He studied Music at Brandeis University and earned a Master of Public Health from Columbia.
Caroline Moore-Kochlacs has been living with metastatic breast cancer for 5 years. She was also recently diagnosed with leukemia. Though many people across the United States and world live with cancer, the stories of their day-to-day life are largely unknown. Caroline sees great value in sharing these stories widely, to help family and friends understand what cancer patients go through and highlight the flaws and pain points in America’s healthcare system. She has shared her experience living with metastatic breast cancer as a part of a fundraising effort for Boston Medical Center in 2016 and more recently with the Humanly Our Story website.
Caroline has an academic background in computational neuroscience. Her PhD (Neuroscience, Boston University, 2016) research developed computational methods to record and analyze more neurons simultaneously with high fidelity. In her academic and professional career, she has also worked in genomics, web analytics, and user interaction and holds a masters degree in Biomedical Informatics (Stanford, 2005). This academic training and professional experience unintentionally prepared her well to be a cancer patient, as she came in with understanding of topics like academic research, statistics, medical records, and bioethics.
Caroline currently works as a freelance data scientist and teaches in the Analytics program at the Northeastern University College of Professional Studies.
Lauren is a Healthcare Practice Lead at BCG Digital Ventures.
Most recently, Lauren was Senior Director and Head of Patient Experience at Immunomedics, a public biopharmaceutical company, where she led the company’s patient experience product and service portfolio and corporate marketing strategy.
Prior to joining Immunomedics, she was the Director of Strategy and Development and Healthcare Practice lead at the storied innovation firm, frog design. Lauren is a board member of the Tigerlily Foundation, a non-profit focused on addressing disparities in breast cancer amongst young women, and holds an MBA from Brown University.