Caregiver Bill of Rights 

As a caregiver, you may easily find yourself being caught up with all of the day-to-day demands of caring for your loved one, and helping to make difficult decisions about their medical care and treatment. This could make you feel burned out. You need to focus on what matters so that you can strengthen your sense of purpose and meaning in your life. Taking care of yourself will allow you to better take care of your loved one. 

We’ve created a “Bill of Rights” that that you can follow as you navigate your caregiver journey. Read it below:

• I have the right to take care of myself. This is not an act of selfishness. It will give me the ability to take better care of my loved one. 

• I have the right to seek help from others even though my loved one may object. I know the limits of my own endurance and strength. 

• I have the right to maintain parts of my own life that do not include the person I care for just as if they were healthy. I know that I do everything that I reasonably can do for this person. I have the right to do some things just for myself. 

• I have the right to get angry, be depressed, and express difficult feelings once in a while.

• I have the right to reject any attempt by my loved one to make me do things out of guilt or anger. (It doesn’t matter if they know they are doing it or not.)

• I have the right to get considerations, affection, forgiveness, and acceptance for what I do for my loved one, as I offer these in return.

• I have the right to take pride in what I’m doing. And I have the right to applaud the courage it has taken to meet the needs of my loved one.

• I have the right to protect my individuality. I also have the right to a life that will sustain me when my loved one no longer needs my full time help.