MY LIFE Program

This program focuses on meeting the needs of young women living with Metastatic Breast Cancer, diagnosed under the age of 45.

Created in honor of a fearless young survivor and advocate, Kristen Martinez, who was diagnosed with metastatic breast cancer and spent the rest of her life working to bring awareness to the issue, this program creates awareness, provides support to young women diagnosed with metastatic breast cancer, provides them with a place to share their stories, videos and offers resources. This program will also partner with other organizations to help meet the specific needs of young women in this demographic.

The MY LIFE Program is brought to you through a generous donation from Eisai.
Thanks to Tesaro for their generous support of MY LIFE podcasts and Twitter chats.


MY LIFE Survey

 

 

Are you a young woman with metastatic breast cancer (45 years of age or younger) who would you like to help us build this program and share your ideas and thoughts? If so, then take our survey here. All your answers will stay confidential.

 

 


Education

We know that you don’t want to have to learn about this, but the more educated you are about the topic, the more empowered you are to make decisions that are right for you.  Being diagnosed with metastatic breast cancer does not mean that there is no hope. Many women can live with metastatic breast cancer for years.  We want you to be equipped with as much knowledge as possible.  With this in mind, Tigerlily Foundation’s MY LIFE Program was designed to provide educational tools, social media communication, podcasts, videos, print literature and stories, focused on meeting your needs, as a young woman living with metastatic breast cancer.


Support

  • MY LIFE Blog:  Visit our blog dedicated to information on metastatic breast cancer, stories, research and more.
  • MY LIFE Twitter Chats: Want to be a part of our MY LIFE Twitter Chats?
    Send us topics you’d like us to address to mbc@tigerlilyfoundation.org . Access our previous twitter chats transcripts if you are unable to join us.
    Also, subscribe to our newsletter on our home page.
  • MY LIFE Social Media Updates:  Join our Facebook page. We provide information on metastatic breast cancer throughout the year; and conduct social media campaigns to educate you more about the topic.
  • MY LIFE Quarterly Newsletter: Want to receive our quarterly MY LIFE newsletter? Subscribe to our newsletter on our homepage and make sure to select the list “MY LIFE”.  You can also get current and archived editions here.
  • MY LIFE Stories: Being diagnosed with metastatic breast cancer can be a daunting experience, but realize that you are not alone. Through MY LIFE Stories, we hope to inspire young women to see that as challenging as this experience might be, there are others like you, who are using their time in a powerful way. Read the MY LIFE Stories here. If you would like to share your MY LIFE Story, please email us at megank@tigerlilyfoundation.org.
  • MY LIFE Podcasts Our MY LIFE Podcasts will feature the perspectives of young women living with MBC, giving insight into their needs, challenges, and offering awareness and support to other Metsters.

RESOURCES

Resources for Caregivers

It is normal for spouses/partners of those with breast cancer to feel many emotions such as anger, anxiety, discouragement, and fear for the future.  Many treatment facilities offer support groups for co-survivors, and there are many blogs, telephone hotlines, and social media groups focused on supporting those who are caring for breast cancer survivors.  The Cancer Support Community has a good list of tips for caregivers and links to other resources.

Providing Information to Children

Children and teens feel many of the same emotions as spouses and partners.  Some families try to protect children by not telling them too many details.  No matter what their age, children can sense family stress.  Talk to your medical team about how and what to tell your children about your cancer.  At the end of the day, what and how you tell your children is up to you.  What matters most is that they feel that they are still connected with you, they don’t feel left in the dark and that they feel that they are able to support you -whatever you decide that to be.

Reassure your children that it’s normal to feel sad, mad, scared, or upset. Tell them about any possible changes in your appearance and/or family routines.  Answer their questions when they feel comfortable asking them.  There are many local, regional, and national support groups for children and teens with parents who are living with cancer. Your children may find it helpful to connect with peers who are experiencing similar emotions.

Resources for the General Public

The Metastatic Breast Cancer Network has a resource section of their website that is filled with links to other sites with information about diagnosis/treatment, complementary and alternative medicine, male breast cancer, clinical trials information, legal resources, financial assistance, medical hospitality homes for those undergoing treatment, free local transportation, free air transportation, free brochures, retreats, free housecleaning services, personalized web pages, and special resources for caregivers and children.


MY LIFE Partner

MET UP.  MET UP is committed to changing the landscape of metastatic cancer through direct action. We protest and demonstrate; we meet with government and health officials and researchers; we support research into metastatic disease; and we speak out against the sexualizing of breast cancer. We are convinced that the deaths of women and men from metastatic breast cancer are a paramount issue, and we pledge ourselves to oppose all who deny the reality of the 522,000 people who will die from metastatic breast cancer globally every year while waiting for a cure to be found.  Learn more at www.metup.org/.

METAvivor.  METAvivor is dedicated to the specific fight of women and men living with stage 4 metastatic breast cancer. At the time of METAvivor’s founding, no organization was dedicated to funding research for the disease and no patient groups were speaking out about the dearth of stage 4 cancer research.  While more and more people have taken up the cry for more stage 4 research, METAvivor remains the sole US organization dedicated to awarding annual stage 4 breast cancer research.  Learn more at www.metavivor.org.

If you serve young women in the metastatic community and want to partner with us, please email mylife@tigerlilyfoundation.org.


Financial Assistance

  • Tigerlily Foundation Funds for Families Program: Young women living with metastatic breast cancer are eligible to receive financial support through Tigerlily Foundation’s Funds for Families Program. When applying for our programs be sure to fill out the MY LIFE portion of the application.
  • Cancer Care
  • Patient Advocate Foundation

Organizing Caregiver Support

  • Lotsa Helping Hands makes organizing and scheduling caregiver support simple and efficient. Members of your community can quickly find ways to help.

Support Networks


Things to Think About


Weddings

  • Wish Upon a Wedding is a nonprofit organization granting weddings and vow renewals for couples facing serious illness or a life-altering circumstance.

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